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2025 IRB Approved Biorepository Advertisement
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1
COMBINED
Brain
is
traveling
to
a
conference
near
you
Interested
in
participating
in
biomarker
research?
COMBINEDBrain
is
a
non-profit
consortium
of
over
80
patient
advocacy
groups
for
rare,
genetic
neurodevelopmental
disorders.
They
recognize
the
need
to
collect
patient
samples
for
researchers
to
identify
biomarkers
to
be
used
to
treat
/develop
treatments
for
our
children.
They
are
on
a
mission
to
collect
~500
samples
from
our
member
organizations
over
the
next
6-
8
months
and
[
Insert
CB
Foundation]
is
one
of
them.
Samples
collected
from
our
community
will
be
stored
and
available
to
researchers
across
the
world.
Are
you
or
one
of
your
family
members
interested
in
participating
in
this
exciting
project
for
[Insert
CB
disorder]
?
Here
are
the
basics:
Who:
Any
participant
diagnosed
with
a
CB
Disorder
or
unaffected
sibling.
What:
COMBINEDBrain
will
be
collecting
urine
samples
and
blood
samples
(processed
for
plasma
and
a
finger
stick)
to
be
stored
in
the
CB
Biorepository
and
available
for
select
biomarker
projects
as
well
as
other
interested
researchers.
They
will
also
collect
several
online
surveys
to
be
completed
by
caregivers.
Where:
COMBINEDBrain
is
collecting
samples
all
across
the
country
this
year.
Please
see
attached
list
of
locations
to
find
the
closest
biorepository
collection
to
you.
You
may
attend
ANY
of
these
meetings.
If
you
are
unable
to
attend
a
conference,
but
are
still
interested
in
participating
please
reach
out
to
your
patient
advocacy
group.
Sample
Size:
Our
goal
is
to
collect
20
samples
from
each
patient
group
How:
Contact
your
patient
advocacy
group
(PAG)
leader
to
further
determine
eligibility
and
the
best
way
and
location
to
participate.
2
COMBINED
Brain
is
traveling
to
a
conference
near
you
Interested
in
participating
in
research?
Who:
Any
participant
diagnosed
with
a
neurodevelopmental
disorder
(we
also
need
a
handful
of
sibling
controls).
What:
COMBINEDBrain
will
be
collecting
blood
samples
(processed
for
plasma
and
a
finger
stick).
You
will
need
to
have
you
or
your
child’s
genetic
report
available.
Cost:
Plasma
samples
and
finger
sticks
are
free!
When:
Any
participant
may
attend
ANY
of
the
below
CB
conferences:
COMBINED
Brain
is
traveling
to
a
conference
near
you
Interested
in
participating
in
biomarker
research?
COMBINEDBrain
is
a
non-profit
consortium
of
over
80
patient
advocacy
groups
for
rare,
genetic
neurodevelopmental
disorders.
They
recognize
the
need
to
collect
patient
samples
for
researchers
to
identify
biomarkers
to
be
used
to
treat
/develop
treatments
for
our
children.
They
are
on
a
mission
to
collect
~500
samples
from
our
member
organizations
over
the
next
6-
8
months
and
[
Insert
CB
Foundation]
is
one
of
them.
Samples
collected
from
our
community
will
be
stored
and
available
to
researchers
across
the
world.
Are
you
or
one
of
your
family
members
interested
in
participating
in
this
exciting
project
for
[Insert
CB
disorder]
?
Here
are
the
basics:
Who:
Any
participant
diagnosed
with
a
CB
Disorder
or
unaffected
sibling.
What:
COMBINEDBrain
will
be
collecting
urine
samples
and
blood
samples
(processed
for
plasma
and
a
finger
stick)
to
be
stored
in
the
CB
Biorepository
and
available
for
select
biomarker
projects
as
well
as
other
interested
researchers.
They
will
also
collect
several
online
surveys
to
be
completed
by
caregivers.
Where:
COMBINEDBrain
is
collecting
samples
all
across
the
country
this
year.
Please
see
attached
list
of
locations
to
find
the
closest
biorepository
collection
to
you.
You
may
attend
ANY
of
these
meetings.
If
you
are
unable
to
attend
a
conference,
but
are
still
interested
in
participating
please
reach
out
to
your
patient
advocacy
group.
Sample
Size:
Our
goal
is
to
collect
20
samples
from
each
patient
group
How:
Contact
your
patient
advocacy
group
(PAG)
leader
to
further
determine
eligibility
and
the
best
way
and
location
to
participate.
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